NARCOLEPSY TIPS

Try to maintain a regular sleep pattern with a regular time of going to bed and a regular time of awakening. Ensure that you get an adequate amount of nocturnal sleep; at least 8 hours.

Avoid large meals and alcohol, both during the daytime and before sleep at night. Avoid foods and drinks that are stimulating in the late evening, such as chocolate and coffee, as they may impair your ability to sleep soundly.

If you need to take a nap, keep it less than 20 minutes and no more than 2 per day (e.g. 15 minutes at lunchtime and 15 minutes at 5:30 p.m.)

Most patients with narcolepsy require two medications; one, a stimulant, to help them keep awake such as Cylert, Ritalin or Dexedrine; and another, an anticataplectic medication, to prevent cataplexy (emotionally-induced muscle weakness), such as Vivactil or Anafranil.

Experiment with the timing of medication to find the most ideal schedule for you. Do not exceed the prescribed dose without consulting your physician.

The main side effects of stimulants are headaches, racing pulse, jitteriness, gastrointestinal upset, tension and anxiety. The main side effects of anticataplectic medications are dry mouth, constipation, and urinary retention.

Some patients with narcolepsy may have such disturbed nocturnal sleep that medications to prevent nightmares, acting-out of dreams, insomnia, and abnormal leg movements during sleep may be necessary. Tofranil, Halcion or Klonopin are medications often used.

Do not drive or operate dangerous equipment if you are sleepy. Take a nap before driving if possible. Consider pulling off to the side of the road and taking a nap during a long trip if it is feasible. Time driving to periods after you have taken your stimulant medication.

Remember that many over-the-counter cold medications contain sedative medications, so be careful when taking them.

Try to enlist support of your family, friends and work colleagues in dealing with your sleepiness. If your employer is understanding, try to arrange a work schedule that allows you to keep active and have times for taking brief naps.

Keep physically active on the weekends, this will help you keep alert and prevent the work week from becoming too tedious.